Wandering Star
Imagine a world where judging distance is a daily struggle and the simple act of pouring water into a glass requires intense concentration. At the age of three, I developed strabismus. Everything had a twin, a condition known as diplopia.
Approximately 4% of the global population experiences this misalignment. While young children often adapt by suppressing one image, older children and adults face mental strain just to navigate the simplest tasks. At twelve, I underwent successful surgery and fully regained binocular vision.
For years, I buried the memory, acting as if it had never happened. However, as an adult I began to look back. I started to ask myself: Was I bad at some sports because of my personality, or was it because of my eyes? Was I so messy at school because of who I am, or because of my poor vision? Has anyone else ever felt what I was feeling?
L., 7, was born via emergency C-section. She manages speech delays and oculomotor dyspraxia, and while team sports were difficult, she found balance and calm through horseback riding.
Vittoria in her room, February 2023
Vittoria's drawing in the hospital right after her operation.
In June 2022, her parents noticed her eye turning inward. This condition was fully corrected by surgery in September 2023. Below, Carlotta, mother of Vittoria, speaks about the experience after some months.
Vittoria in her room, March 2024
Angelica is Daniela’s niece. She wears a patch every morning for four hours. Her grandmother applied the first one, linking Angelica to her aunt Daniela through a shared bond.
"Mom, what's that in the sky?" and she replied, "The Moon."
The mother realised that her
daughter had never been able to see it clearly before.
Camilla has albinism, a condition where a lack of melanin affects optic nerve development, leading to light sensitivity, nystagmus, and sometimes strabismus.
On the contrary, she places great value on uniqueness, which she sees as something positive.
Briciola, a cat with strabismus, represents a condition common in certain breeds. Felines were central to Hubel and Wiesel’s landmark studies on how visual development shapes the brain.
My father managed my medical care and pushed for my surgery. Even though both my parents had perfect vision, I looked for a physical resemblance in my father’s features, a link to a condition they didn’t share.
In "Face to Face with Strabismus," Lucia Wilson weaves a compelling family legend, a Burmese monk’s warning that a snakebite would cloud her family's vision for generations, into a broader exploration of the condition. Created alongside photographer Francesca Cesari, psychologist Dr. Silvia Riva, and ophthalmologists Saurabh Jain and Giovanni Battista Marcon, this collaborative work also serves as the foundation for strabismus-support.co.uk, a vital resource for the psychosocial support of patients.
“Strabismus makes you live truly embarrassing moments, from early childhood to adulthood.” His son (who suffered from amblyopia) plays young Vincenzo: he is pictured in a gym greeting a girl, who does not return the gesture, thinking it was meant for the friend behind him, who actually responds.
You can hear Vincenzo’s voice here.
Amanda was born with accommodative strabismus. Looking in the mirror is not always a simple act.
Wandering Star formed also the basis of my thesis in Psychology, aims to bring awareness to the subtle stigma and lack of understanding surrounding strabismus. You can read here the abstract.
Behind the scenes of Wandering Star, with the support of the Fujifilm GFX Challenge Grant.
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