Wandering Star
Imagine a world where judging distance is a daily struggle and the simple act of pouring water into a glass requires intense concentration. At the age of three, I developed strabismus. Everything had a twin, a condition known as diplopia.
Approximately 4% of the global population experiences this misalignment. While young children often adapt by suppressing one image, older children and adults face mental strain just to navigate the simplest tasks. At twelve, I underwent successful surgery and fully regained binocular vision.
For years, I buried the memory, acting as if it had never happened. However, as an adult I began to look back. I started to ask myself: Was I bad at some sports because of my personality, or was it because of my eyes? Was I so messy at school because of who I am, or because of my poor vision? Has anyone else ever felt what I was feeling?
L., 7, was born via emergency C-section. She manages speech delays and oculomotor dyspraxia, and while team sports were difficult, she found balance and calm through horseback riding.
Vittoria in her room, February 2023
Vittoria's drawing in the hospital right after her operation.
In June 2022, her parents noticed her eye turning inward. This condition was fully corrected by surgery in September 2023. Below, Carlotta, mother of Vittoria, speaks about the experience after some months.
Vittoria in her room, March 2024
At 47 years old, due to visual difficulties that made many everyday activities like driving and reading difficult, she began vision therapy guided by an optometrist. Over time, she learned to use both eyes in a coordinated way, achieving an unexpected result: for the first time in her life, she began to perceive the world in three dimensions.
Her story attracted great interest because until then it was believed the adult brain had very limited plasticity and was unable to acquire new functions. Barry is also the protagonist of the article Stereo Sue, written by Oliver Sacks for The New Yorker in 2006. In this audio, she shares the wonder of seeing snow in three dimensions for the first time.
Angelica is Daniela’s niece. She wears a patch every morning for four hours. Her grandmother applied the first one, linking Angelica to her aunt Daniela through a shared bond.
"Mom, what's that in the sky?" and she replied, "The Moon."
The mother realised that her
daughter had never been able to see it clearly before.
Despite having very attentive parents, it was the teacher who first noticed it.
Her mother told me that one evening, while they were returning home, her daughter asked, "Mom, what’s that in the sky?" and she replied, "The Moon."
It was then that the mother realized her daughter had never been able to see it before.
Giulia is an energetic 8-year-old girl. Though stubborn, she has never shied away from the balance beam in rhythmic gymnastics, despite the visual challenge.
She has accommodative strabismus, and the best solution for her is wearing glasses. She wears bifocals with a visible line that constantly corrects her strabismus. However, her doctor and mother have helped her accept them, which is important because school hasn’t always been easy. Some classmates have been unkind in the past.
Camilla has albinism, a condition where a lack of melanin affects optic nerve development, leading to light sensitivity, nystagmus, and sometimes strabismus.
On the contrary, she places great value on uniqueness, which she sees as something positive.
Briciola, a cat with strabismus, represents a condition common in certain breeds. Felines were central to Hubel and Wiesel’s landmark studies on how visual development shapes the brain.
My father managed my medical care and pushed for my surgery. Even though both my parents had perfect vision, I looked for a physical resemblance in my father’s features, a link to a condition they didn’t share.
In "Face to Face with Strabismus," Lucia Wilson shares a family legend, a monk in Burma warned her mother that a snakebite would affect the family's vision for generations. ”Face to Face with Strabismus” is a book by Lucia Wilson, in collaboration with photographer Francesca Cesari, and with psychologist, Dr Silvia Riva, and consultant ophthalmologists, Mr Saurabh Jain and Dr Giovanni Battista Marcon.
“Strabismus makes you live truly embarrassing moments, from early childhood to adulthood.” His son (who suffered from amblyopia) plays young Vincenzo: he is pictured in a gym greeting a girl, who does not return the gesture, thinking it was meant for the friend behind him, who actually responds.
You can hear Vincenzo’s voice here.
Amanda was born with accommodative strabismus. Looking in the mirror is not always a simple act.
Wandering Star formed also the basis of my thesis in Psychology, aims to bring awareness to the subtle stigma and lack of understanding surrounding strabismus. You can read here the abstract.
Behind the scenes of Wandering Star, with the support of the Fujifilm GFX Challenge Grant.
Didascalia Lorem ipsum dolor sit amet, consectetur adipiscing elit. Cras dapibus eu turpis eu ultriLorem ipsum dolor sit amet, consectetur adipiscing elit. Cras dapibus eu turpis eu ul